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National Burden of Rare Disease Survey
- Joff Masukawa
- Jul 9, 2020
- 1 min read
National Burden of Rare Disease Survey – We Need YOU: What’s the cost of living with a rare disease to YOU? If you or a member of your household is living with a rare disease, EveryLife Foundation asks you to take the National Burden of Rare Disease Survey. Deadline to participate is Monday, July 20, 2020. Learn more about the survey here.
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