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    How do we identify and measure value for patients with rare diseases?

    How do we identify and measure value for patients with rare diseases?

    Rare diseases impact 1 in 10 Americans, and over 400 million people worldwide. The current development and FDA approval process can cost hundreds of millions of dollars – and take an average of 15 years – to develop one therapy. For the 30% of children diagnosed with a rare disease, who won’t live to see their 5th birthday, this wait is unthinkable. Meanwhile, prolonged – and unnecessary – diagnostic delays and inadequate treatment protocols yield increased healthcare costs a

    What is the impact of rare diseases on individuals and health care systems?

    Congressionally funded report details diagnostic challenges  and costs of rare diseases in the US

    Congressionally funded report details diagnostic challenges and costs of rare diseases in the US

    Diagnostics: Moving to the forefront of Global Healthcare

    Diagnostics: Moving to the forefront of Global Healthcare

    Economic Burden of Rare Diseases Nearly $1 Trillion

    Economic Burden of Rare Diseases Nearly $1 Trillion

    CBO Comparison of Brand-Name Drug Prices Among Selected Federal Programs

    CBO Comparison of Brand-Name Drug Prices Among Selected Federal Programs

    Orphan drugs account for more than half of all FDA drug approvals in 2020

    Orphan drugs account for more than half of all FDA drug approvals in 2020

    Rare Disease Stakeholders: Do mRNA COV19 Vaccines Affect Eligibility to Receive Future Gene Therapy?

    Rare Disease Stakeholders: Do mRNA COV19 Vaccines Affect Eligibility to Receive Future Gene Therapy?

    How do we identify and measure value for patients with rare diseases?

    How do we identify and measure value for patients with rare diseases?

    National Burden of Rare Disease Survey

    HVH Precision Analytics and Diligentia Strategy Announce Upcoming Presentation at the 2020 American

    HVH Precision Analytics and Diligentia Strategy Announce Upcoming Presentation at the 2020 American

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